Assalamualaikum,
Setelah terbaca di forum OHUB ttg seorang lagi kanak2 mengalami Kawasaki Disease (KD), sy terpanggil utk continue entry sy yg lepas di sini:
http://mawihasni.blogspot.com/2013/03/my-request-to-moh-kawasaki-disease-kd.html
Actually, sy dah terima maklum balas dari MyHealth Portal pada 28/03/2013. Sy hampir terlupa utk post kembali maklumbalas ini yg dijawab oleh Dr Hung Liang Choo, Pakar Perunding Pediatrik & Pediatrik Cardiology, Jabatan Pediatrik, Hospital Kuala Lumpur.
Terima Kasih Dr Hung Liang Choo & pihak MoH kerana menjawab email sy.
Tujuan sy memaparkan maklum balas ini adalah untuk menyedarkan parents ttg bahayanya KD ini.
Daripada maklumbalas ini, sy rasa sedikit kesal, as from the 1st sentence...they said "We do not know the incidence or prevalence of Kawasaki Disease in Malaysia"...
Anyway, sy juga masih ada beberapa pertanyaan especially on Kawasaki web-based registry yg ditubuhkan oleh pihak MoH.
& Pihak MoH juga menggalakkan kita menubuhkan KD Support Group..well, ada sesapa volunteer! angkat tangan ya!!
MAKLUMBALAS
1. The statistics of Kawasaki Disease
We do not know the incidence or prevalence of Kawasaki Disease in Malaysia. In Japan, the incidence is about 200 per 100,000 children under 5, incresing over the years. Nearer home, in Singapore or Taiwan, the incidence is about 60 to 70 per 100, 000 children under 5.
Ministy of Health (MoH) has set up a web-based Kawasaki Disease registry in 2010. Paediatricians from 37 MoH hospitals, 8 private hospitals and 3 university hospitals were invited as users. In 2010, 143 cases were reported from 17 MoH hospitals and 1 private hospitals, and 140 cases in 2011.
Based on statistics compiled by Health Informatics Center, MoH, the percentage of admissions in MoH Hospitals due to Kawasaki disease among children under 5 years from 2007 to 2011 ranged from 0.06% to 0.08% of the total admissions of children in this age group.
2. Support from the Ministry of Health for Kawasaki Disease
MoH hospitals treat all Kawasaki Disease with minimal charges, especially treatment with intravenous Immunoglubulin (IVIG) which is expensive, and serial follow up and ECHO examination.
One of the aims of the Kawasaki Disease registry is to assist patients on their long term follow up.
The Ministry is also trying to encourage parents to set up a Kawasaki Disease support group as one of the effort to increase awareness of Kawasaki Disease in the community and also to promote healthy life-style.
Past history of Kawasaki Disease is now recognised as one of the cardiovascular risk factors. As such, the number of patients with Kawasaki Disease is cumulative and as the years go by when these children grow up into adulthood.
Disediakan oleh:
Dr. Hung Liang Choo
Pakar Perunding Pediatrik & Pediatrik Cardiology
Jabatan Pediatrik, Hospital Kuala Lumpur
dan
Pusat Informatik Kesihatan
Bahagian Perancangan
Kementerian Kesihatan Malaysia
